A gripping and thought provoking story about family bonds and finding hope in unexpected places. Beautifully written, compelling and thought provoking, I was drawn by the cover and blurb, not one I would normally read but I’m glad I did.

A Girl Called Patience is one of those stories that emotionally grips you. Each character is struggling in their own way, from a marriage separated by work location, to a mother/daughter or father/daughter relationship that is strained, to even a girl named Patience trapped in her body by a disease that is no ones fault, and yet everyone is paying the price that comes from trying to love Patience well. I liked how the characters intertwined and the paths each took to end up where they are at the conclusion of the story. The culmination of all stories is the trial of all trials, a trial that could unbind Patience and set her free. But the cost....oh the cost. Are you willing to pay the price for a loved ones freedom, even if it's a miraculous event? What a hook!!!! The story is an easy one to follow, and one I do highly recommend, as it does pull at your emotional strings. Yet...and yet...

**My one caveat though, and it's a big doozy of one, is while Patience is trapped in her body, they treat her like a two year old. They believe her thinking skills is that of a two year old. She even says so herself...and yet, she knows names of medication, of curse words, of romance, and flirting, and sexiness, and understanding of other words and concepts that a two year old just cannot possibly understand, and that is all of a mentality of someone who is most definitely NOT a two year old. And yet there's no real explanation of how there is this stark difference between what the doctors and family members keep saying is her mentality, and yet, the reality is the opposite. This may have been explained, and I totally missed it, but still bothers me to a degree that I have to state it outloud** Otherwise...excellent story.
*I received a copy of this book from NetGalley. This review is my own opinion*

A beautiful heartfelt book that will stay with me for a long time. As a person with a disability myself I could relate to Patience easily and I was non verbal for a long time but the hardest part was that I could still understand everything but because I was unable to communicate people think that you can't understand. I loved every minute of this story and although it made me cry it also made me smile.

I will not soon forget Patience nor her family!
I enjoyed this novel.
It is a heartfelt, heartbreaking journey of a family with many troubles.
The center of this group; is a young woman named Patience.
Patience is a non-verbal, non-ambulatory, daughter and sister with a diagnosis of Rett's syndrome. Rett's syndrome is a genetic mutation that is primarily found in females. It causes brain deterioration at a very young age.
Her Mum, Louise is the primary care-giver for Patience.
Her very best friend, is her older sister, Eliza who tells Patience all her life secrets. So very many secrets!
There is tension, fear and drama as this unit try to survive each day and dilemma.

When an experimental gene therapy trial is offered to possibly help with Rett's, there are many decisions to make.
It is safe? What are the side effects? Can it be a cure or a hindrance and will it tear the family apart?

I have a friend who has a daughter with this dreaded syndrome and it is tough.
It tortures the family and can and often does tear them apart.

This book was well done and very detailed and I could totally relate to the story.
Thank you to #NetGalley and to#Aria & Aries for this ARC and allowing me to read and to provide my own review.