Worlds of Care
The Emotional Lives of Fathers Caring for Children with Disabilities
by Aaron J. Jackson
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Pub Date Apr 13 2021 | Archive Date Jul 16 2021
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Description
The stories of fathers caring for non-verbal children and how these experiences alter their understandings of care, masculinity, and living a full life.
Vulnerable narratives of fatherhood are few and far between; rarer still is an ethnography that delves into the practical and emotional realities of intensive caregiving. Grounded in the intimate everyday lives of men caring for children with major physical and intellectual disabilities, Worlds of Care undertakes an exploration of how men shape their identities in the context of caregiving. Anthropologist Aaron J. Jackson fuses ethnographic research and creative nonfiction to offer an evocative account of what is required for men to create habitable worlds and find some kind of “normal” when their circumstances are anything but. Combining stories from his fieldwork in North America with reflections on his own experience caring for his severely disabled son, Jackson argues that care has the potential to transform our understanding of who we are and how we relate to others.
Advance Praise
"Worlds of Care is a powerful and admirably candid deep dive into the experiences of men raising kids with significant cognitive and physical disabilities. By blending intimate accounts of his own experiences with insightful ethnographic research, Jackson casts light on a long-neglected realm of human experience."––Steve Silberman, author of NeuroTribes: The Legacy of Autism and the Future of Neurodiversity
"Many men are caring, supporting, championing their children with disabilities. Aaron J. Jackson's warm, rich, and nuanced account provides a welcome window into their lives and challenges us all to rethink who we are and who we can be."––Tom Shakespeare, Professor of Disability Research at London School of Hygiene and Tropical Medicine
"Worlds of Care draws you deep into the everyday embodied experiences of fathers caring for children with major disabilities in a world that too often turns a blind eye. Richly and reflexively observed, analytically inspiring and utterly moving, this is an ethnographic tale with gravitas that will stay with you."––Tamara Kohn, Professor of Anthropology, University of Melbourne
Available Editions
| EDITION | Other Format |
| ISBN | 9780520379855 |
| PRICE | $29.95 (USD) |
| PAGES | 216 |
